Fear, hurt, shame, and anger often consume parents upon learning their child has sickle cell disease. The initial shock can be paralyzing and can make parents overly cautious, fearing for their child’s health and safety.

We understand where you’re coming from. But being too strict or overprotective can often rob your child of the chance to experience the simple joys of childhood—the laughter, the friendships, the adventures. 

Instead of being solely focused on the limitations imposed by sickle cell, why not empower your child by shifting your perspective? Take the time to truly understand their strengths and limitations, arming them with the knowledge to navigate life. Find that delicate balance between ensuring their safety and granting them the freedom to explore and thrive.

Understand your child’s limitations

It’s important to know what your child’s limits are. For children with sickle cell, this means paying attention to how they feel and react. Monitor their symptoms, what sets them off, and how they respond. 

Writing these things down in a dedicated sickle cell journal for three to four months can give you a good idea of what they go through. This helps you understand what they need and how to help them better. By knowing their limits, you can support them in the best way possible and make sure they’re happy and healthy.

Find ways to support your child’s passion while keeping them safe

It’s important for kids to explore their interests, but safety is the priority, especially for children with sickle cell. Instead of holding them back, why not explore ways to support their passions while ensuring their safety?

For example, if your child enjoys baseball, ensure they stay hydrated during practice and games to prevent pain crises. Providing electrolytes and immune-boosting supplements like EvenFlo can further support their well-being.

Prepare your child for potential crises by educating them on recognizing symptoms and managing emergencies. Equip them with necessary supplements and tools, and ensure coaches and instructors are informed about their condition. Additionally, further arm yourself with knowledge and protocols to support your child by enrolling in a sickle cell program where you can learn valuable strategies and techniques to guide them in effectively managing their condition and thriving in all aspects of life.

Try not to overreact or panic

It’s common for parents to rush to the hospital, fearing their child is in a sickle cell crisis. However, it’s important to take a step back and investigate the root cause of their discomfort or pain. While sickle cell disease can cause pain, it’s not always the culprit.

Take, for example, a real-life scenario where parents repeatedly brought their child to the doctor, convinced he was in crisis. Upon further examination, it turned out the child had simply injured himself during physical activity. By talking to the child and understanding their activities, the true cause of the pain was identified, and appropriate action was taken.

So, before jumping to conclusions and assuming every symptom is a sickle cell crisis, it’s essential to gather information and assess the situation calmly. By doing so, you can avoid unnecessary panic and ensure your child receives the right care for their specific needs.

Connect with a sickle cell doctor who has your best interest at heart

When it comes to managing sickle cell disease, finding the right doctor is crucial. You want someone who not only has the knowledge and expertise but also listens to your concerns and values your input. It’s essential to feel confident and heard in your doctor-patient relationship.

Remember, you have the right to advocate for yourself and your child. If you feel like your needs aren’t being met or you’re not getting the care you deserve, don’t hesitate to find a new doctor. There are sickle cell doctors out there who are committed to putting your best interests first and providing personalized care and support for your child and your family.

Let your child be a child

Amidst the challenges of managing sickle cell disease, it’s crucial to remember that your child is still a child. They crave play, exploration, and the simple joys of childhood. As parents, it’s essential to prioritize their emotional well-being and social experiences.

Encourage your child to engage in age-appropriate activities that bring them joy and fulfillment. Whether it’s playing with friends, exploring nature, or pursuing hobbies, let them embrace life to the fullest. Your role is to guide them in navigating these experiences safely, ensuring they can enjoy childhood without compromising their health.

Sickle cell disease is not your child’s death sentence

It’s time to shift the narrative! While sickle cell disease may bring pain, it doesn’t mean your child’s life is over. Many children with sickle cell have learned to manage their condition, pursue their passions, and lead fulfilling lives. Dr. Charlie Ware, an epigeneticist and a sickle cell patient himself, has guided numerous individuals on this journey.

With his expertise in natural medicine and his personal victory over sickle cell, Dr. Ware offers a science-based protocol to help your child thrive beyond the limitations of the disease. Tailored to each individual’s genes, status, and medical history, his protocols cover the four main pillars of health: diet, lifestyle, exercise, and rest.

If you seek a sickle cell doctor who prioritizes your child’s health and recommends scientifically tested, natural protocols, connect with Dr. Ware TODAY. Discover how you can empower your child to live life to the fullest while putting sickle cell disease in the background.